Why this book exists
A focused place to understand what is happening
Nerys is thirty-four and has had epilepsy since she was nineteen. She had four seizures last year, which is to say that in a year of five hundred and twenty-five thousand minutes, roughly ten of them involved a seizure. If you asked her how much of her year epilepsy occupied, she would not say ten minutes. She would say all of it. That gap is what this book is about. Epilepsy for Nerys is not an occasional event but a permanent presence, and it shows up in places that never appear in a medical record: in whether she runs a bath, in where she sits on a train, in the half second of doubt when she feels slightly strange, in the decision about how much to say to somebody new. None of that is a seizure. All of it is epilepsy, and it runs whether or not.
The writing is designed to reduce shame, bring the underlying pattern into view and give you practical ways to respond without pretending that every life follows the same formula.
